30 Jan Temp1 – FoxG1 on Daily Telegraph
Posted at 05:56h
With the Singha Family’s efforts at raising awareness of FoxG1 (Brain Factor1) syndrome and the efforts to find a cure , the news was picked up by Daily telegraph. At this time there were less than 175 families that had children diagnosed with Foxg1. It was a big surprise to Vivek and Monika that there was no child in Sydney at all diagnosed with FoxG1 as yet.
Unintentionally Kushagra became the first child in Sydney
and the first child in India
to be diagnosed with FoxG1 (Brain Factor1) Syndrome.
Check out the Hyperlink below to see the news story on Daily telegraphs website.