About FoxG1

 

FOXG1 syndrome is a condition characterised by impaired development and structural brain abnormalities. Affected infants are small at birth, and their heads grow more slowly than normal, leading to an unusually small head size (microcephaly) by early childhood. The condition is associated with a particular pattern of brain malformations that includes a thin or underdeveloped connection between the right and left halves of the brain (a structure called the corpus callosum), reduced folds and grooves (gyri) on the surface of the brain, and a smaller than usual amount of brain tissue known as white matter.

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Our Mission

Increase Awareness

Accelerate Medical Research

Provide Support To Families

Board Members

TOGETHER WE WILL FIND A CURE

 

Imagine if you were not able to sit, Imagine if you are not able to walk, Imagine if you were not able to talk by yourselves, these are some of the challenges faced by children affected by FoxG1 syndrome everyday! Now imagine if we could change all that. What IF you could make a difference? The goal of FoxG1 Foundation Australia is to provide hope and support for individuals with FOXG1 and their families via any means possible. We are their voice.

Research

Phenomenal advances in genetics and research are enabling ground breaking discoveries everyday.

Genetics

The human body has 20,000 genes. Genes are like little machines that make protiens. FoxG1 is one of those genes

Hope

2014 saw the worlds first case of gene editing resulting in saving the life of a girl and Lyla made headlines around the world.

Board of Directors

 

FoxG1 foundation is extremely privileged to have volunteer directors who are the brains behind the research and awareness efforts.

Peter Parslow PhD, Chairperson

Peter has multinational experience running life science and healthcare companies in Australia, USA and China. For the past 17 years, Peter has been working in various roles equipping medical research institutes and hospitals with technologically advanced solutions. Peter has a PhD in Physiology, a Bachelor of Behavioural Science/Psychology as well as post graduate certifications in Chinese, Russian, Business and the Australian Institute of Company Directors

Ellie (Sarka) McLean MD (2017-2020) Director (Sports engagement)

Professionally, Junior Medical Officer Northern Sydney. Notre Dame University Sports Representative 2018-19.

Fabien Delerue PhD USYD Director (Research) Lead scientist (Australia)

Professionally Head - Genome Editing at Macquarie, see the exceptional LinkedIn resume with 20 + experience of cellular and animal model development experience at USYD, UNSW and Macquarie. Volunteer: Multiple runs for FoxG1 and Macquarie DRC

Maria Mitrou - Board Member and Director (Community engagement and Fundraising)

In Marias words: ``I believe everyone is uniquely talented and gifted, I see potential in every person and opportunity in every situation, and if we all collaborate most goals are achievable.`` Maria is a counsellor a mother and has been involved in the community in multiple roles and has volunteered with the red cross and community crisis centers.

Isham Nilar - Treasurer, Bachelor of Business, Masters Applied Finance and a Masters of Actuarial Studies - UNSW.

Isham has over 15 years’ experience in financial, commercial and risk management leadership gained across a number of industries including investment banking, transport and energy having previously worked at Macquarie Group, Qantas and Origin Energy.

Kate Roberts - MBA, Director Governance and Partnerships

Kate is an external relations professional with over 18 years experience in the pharmaceutical industry working across communications, public policy, sustainability, governance, compliance and patient advocacy.

Monika Manhas, Founding Director, Mum to Kush, parents outreach contact

Lead fundraiser and organise community events (Bunnings BBQ’s and corporate events, organized first Gala fundraised in 2016, Founding president FoxG1 Foundation 2015-20

Vivek Singha, Founding Director, dad to Kush

Interested To Join Cure FoxG1 Team

Family Stories

KUSHAGRA SINGHA

PARENTS: MONIKA & VIVEK

Together we can end childhood suffering

Events

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