About FoxG1


FOXG1 syndrome is a condition characterised by impaired development and structural brain abnormalities. Affected infants are small at birth, and their heads grow more slowly than normal, leading to an unusually small head size (microcephaly) by early childhood. The condition is associated with a particular pattern of brain malformations that includes a thin or underdeveloped connection between the right and left halves of the brain (a structure called the corpus callosum), reduced folds and grooves (gyri) on the surface of the brain, and a smaller than usual amount of brain tissue known as white matter.


Our Mission

Increase Awareness

Accelerate Medical Research

Provide Support To Families

Board Members



Imagine if you were not able to sit, imagine if you are not able to walk, imagine if you were not able to talk by yourselves, these are some of the challenges faced by children affected by FoxG1 syndrome everyday! Now imagine if we could change all that. What IF you could make a difference? The goal of FoxG1 Foundation Australia is to provide hope and support for individuals with FOXG1 and their families via any means possible. We are their voice.


Phenomenal advances in genetics and research are enabling ground breaking discoveries everyday.


The human body has 20,000 genes. Genes are like little machines that make protiens. FoxG1 is one of those genes


2014 saw the worlds first case of gene editing resulting in saving the life of a girl and Lyla made headlines around the world.

Board of Directors


FoxG1 foundation is extremely privileged to have volunteer directors who are the brains behind the research and awareness efforts.

Ellie (Sarka) McLean MD (2017-2020) Director (Sports engagement)

Professionally, Junior Medical Officer Northern Sydney. Notre Dame University Sports Representative 2018-19.

Maria Mitrou - Board Member and Director (Community engagement and Fundraising)

In Marias words: ``I believe everyone is uniquely talented and gifted, I see potential in every person and opportunity in every situation, and if we all collaborate most goals are achievable.`` Maria is a counsellor a mother and has been involved in the community in multiple roles and has volunteered with the red cross and community crisis centers.

Monika Manhas, Founding Director, Mum to Kush, parents outreach contact

Lead fundraiser and organise community events (Bunnings BBQ’s and corporate events, organized first Gala fundraised in 2016, Founding president FoxG1 Foundation 2015-20

Vivek Singha, Founding Director, dad to Kush

Interested To Join Cure FoxG1 Team

Family Stories



Together we can end childhood suffering